MS and Occupy Wall Street

This weekend I stopped by Occupy Wall Street – enjoy!

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When I Walk Video Journal 57: Realizing PPMS

This was the 1st time that I realized the gravity of the situation at hand. That I was going to be in a wheelchair. This was the 1st time that somebody was so frank with me explaining the different kinds of wheelchairs – power chairs versus power scooters.
for a healthy 27-year-old that’s a lot to take!
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Scooter Man Says…

Watch this video for an important message from your friendly neighborhood Scooter Man!

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How It Started (2004)

Back in 2004, things were really going well for me. I was working on a couple of films, and my most recent production was getting into film festivals all over the world. I traveled to Glasgow, the Canary Islands, Mexico City, and Amsterdam showing my film and loving it.
It was unexpected. My vision was blurry and I was walking off balance. It was unassuming, but over the year, it continued to get worse.
I was spending Christmas with my family in Toronto and I tumbled down the stairs.
All of us with MS have similar stories of surprise and the unexpected when MS first rears his head.

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Leaving New York

When I returned back from Kenya, I realized that New York was not the same place that I knew.

I realized that navigating through the city with multiple sclerosis was going to be a challenge. I decided to take a break, going back to grad school. I left New York.

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Remembering 9/11

In time for the 10 year anniversary of 9/11, I share with you the last film I made before my diagnosis with multiple sclerosis. It was called Lest We Forget – it connected the post-9/11 racial backlash to the World War II post-Pearl Harbor backlash against the Japanese.

I was without any MS symptoms – I finished the film when I was 24. I remember, during that time, that I was working harder than I had ever had before. I’m glad I did because I got the opportunity to artistically reflect on such a monumental experience in our history.

I always thought that this would be the film that I’d be the most proud of – I worked tirelessly on it and it turned out better than I had ever imagined… but as I’m winding down post-production with When I Walk, I see that this has the potential to be the film that I am most proud of! Plus, all your words of encouragement help me think this (When I Walk) is a unique film!

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I hope we can all take some time this weekend and remember all those affected during the 9/11 attacks. Our prayers and thoughts are with you.

Still Filming!

In a potential subconscious act of defiance, after my diagnosis of primary progressive multiple sclerosis, I quickly started working on my next film. It was definitely not an easy production. The film is called Twins of Mankala.

For 3 weeks, I went with my mom and brother to an isolated region outside Nakuru, Kenya to film the day in the life of an 8-year-old girl there.

The film ended up looking beautiful. But it was the most difficult shoot I had ever done until then.

Here’s my accounts of the film…

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